At Enduring Hearts, we envision a world where every child that needs a new heart receives one that lasts a lifetime. Enduring Hearts is the only national nonprofit dedicated to funding critical research to increase longevity and improve the quality of life for children with a transplanted heart.
Why we fund
For a child who undergoes a life-saving heart transplant, it’s not the end of the journey; it’s just the beginning. While a successful heart transplant offers hope in life, it’s important to know that it’s not a permanent solution. In fact, approximately 500 children receive a heart transplant every year, with the average lifespan of that transplanted heart lasting less than 20 years. While scientific advances have enhanced the graft survival rates during the initial year, long-term survival has only marginally improved.
What drives our research
Since our inception in 2013, Enduring Hearts has dedicated over $10 million to innovative research initiatives. Our mission revolves around several critical areas, including the development of cutting-edge technologies, the establishment of, the establishment of new post-transplant care guidelines, enhancing patient compliance with vital medications, and most importantly, development of less invasive procedures to combat organ rejection.
Improve longevity and the quality of a child's post heart transplant life by reducing/eliminating rejection and cardiac allograft vaculopathy (CAV)
Identify and develop
pre-transplant strategies, innovations or new technologies for children waiting for, and immediately following, a heart transplant that would improve
post-transplant longevity
Validate and implement evidence-based strategies to improve medication adherence and longevity of recipients during their adolescence and their transition to adult care
