FAMILY RESOURCES
PARENT ADVISORY NETWORK
The Enduring Hearts Parent Advisory Network was assembled to help families by empowering them with knowledge. As a member, you will receive not only important research updates but also provide valuable input to our organization about the needs of children and families.
Click here to join.
Facebook Live Sessions
Throughout the year, we hold several Facebook Live Informational Sessions with our Expert Researchers! Learn about the life-saving research we fund by joining us at our next session or by checking out one of our previous sessions below!
- Tools for Supporting Mental Health Along the Transplant Journey
- Dr. Melissa Cousino, Ph.D., University of Michigan
- Did you know that some children with a transplanted heart never experience rejection?
- Dr. Lori West, M.D., University of Alberta
- Can a blood test warn that rejection could be coming?
- Dr. Shelley Miyamoto, M.D. & Dr. Scott Auerbach, M.D., University of Colorado
- Learn More About New Methods of Detecting Rejection!
- Dr. Justin Godown, M.D. & Dr. Jonathan Soslow, M.D., Children’s Hospital at Vanderbilt
PREVIOUSLY ASKED QUESTIONS:
- When should you seek out a second opinion?
- Do you know what percentage of heart transplant recipients are able to work full time? Do you know what percentage of transplant recipients receive disability benefits as adults?
- Do some transplant recipients have greater risk factors for transplant coronary artery disease than others?
- Are there any diet, exercise, or other practices that can help reduce or slow down the onset of coronary artery disease in a transplanted heart?
SUBMIT YOUR QUESTIONS TO INFO@ENDURINGHEARTS.ORG
BECOME A FUNDRAISER
CREATE A PERSONALIZED FUNDRAISING PAGE
By creating your own fundraiser, you are helping fund life-saving and life-changing transplant research! You can help spread the word by creating a quick and easy fundraising page to share via email and on social media! Personalize your own message, including your photos and transplant journey and help support our mission to make a transplant the cure!
