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About Us

OUR MISSION:
A HEART TRANSPLANT IS NOT A CURE, BUT A BRIDGE TO LIFE …

Enduring Hearts funds research to increase longevity and improve the quality of life for children with a transplanted heart. 


OUR STORY
WHO IS ENDURING HEARTS?
Enduring Hearts is a registered 501 (c)(3) nonprofit organization dedicated to funding innovative research aimed at improving the lives of children living with transplanted hearts.
WHAT DOES ENDURING HEARTS DO?
We work with our team of leading doctors and scientists in the field of transplantation, pediatric cardiology and immunology to drive leading-edge research that will make a transplant last a lifetime. Our leadership and Board of Directors follow the research process closely, utilizing our business acumen to ensure that the funding is used efficiently and that our investments make an impact.

WHY OUR WORK IS NECESSARY:

  • A transplant is not a cure. The average heart transplant lasts only 17 years.
  • One in four transplants will fail largely due to organ rejection. Of those who have another transplant, nearly half will not survive.
  • Anti-rejection drugs and rejection detection procedures negatively affect their quality of life. 
  • Enduring Hearts is the only nonprofit solely dedicated to research that helps kids with heart transplants live longer, healthier lives.
  • We fund the critical, yet often overlooked research needed to eliminate rejection, prevent life-threatening complications and reduce the risk that a second transplant will be needed.

WHO OUR WORK WILL HELP:

  • Babies born with congenital heart defects that cannot be surgically repaired and require a heart transplant.
  • Children who experience end-stage heart failure through heart disease, infection, and Cardiomyopathy.
  • Not only patients, but their entire families that all live with the stress of knowing that the transplanted heart may eventually fail.
  • Many kids who receive other transplanted organs will also experience organ failure due to rejection.
  • Adult heart transplant recipients.
 
OUR TEAM
ENDURING HEARTS LEADERSHIP & BOARD

Enduring Hearts is led by our Chief Executive Officer and governed by a body of independent professionals in addition to advisement from our Scientific Advisory Committee. Together, we are spurring the momentum of Enduring Hearts to rapidly make a significant impact, at a time when opportunities to advance transplantation science is greater than ever. Our Board of Directors continues to demonstrate a commitment to governance, fundraising, grant-making and establishing partnerships with leading institutions to achieve long-term success.

  • Joe Brownlee – Chief Executive Officer (interim)
  • Ruth Manlapas – Board Chair
  • Patrick Gallagher – Board Vice Chair
  • Mike Gahan – Board Treasurer
  • Dr. Robert Boucek, M.D. – Board Member/ Scientifc Advisory Committee Chair
  • Blake Albert – Board Member
  • Dr. Yolanda Becker – Board Member
  • Jeff Carper – Board Member
  • Max Dean – Board Member
  • Jason Decker – Board Member
  • Jeff Garrett – Board Member
  • Dr. Heather Gatcombe – Board Member
  • John Hawkins – Board Member
  • Stephen Ochs – Board Member
  • Scott Stephens – Board Member
  • Sarung Tripathi – Board Member
  • Josh Weiner – Board Member
  • Avi Yashchin – Board Member
  • Raeann Tighe – Business Administrator
  • Diann Begley – Program Administrator
  • Jessica Douglas – Director of Development
  • Jazmine Charles – Marketing & Communication Specialist
  • Patrick and Madelyn Gahan – Founders
SCIENTIFIC ADVISORY BOARD
Our Scientific Advisory Committee (SAC) is a critical part of the team at Enduring Hearts. The SAC peer-reviews grants several times a year and helps provide invaluable input that enables us to dedicate funds to the most promising research that will save lives for kids who are alive TODAY.

The SAC is comprised of top pediatric cardiologists and immunologists from highly esteemed institutions with many years of both patient care and clinical research.

The SAC ensures that our funding is used to serve the mission of our organization to increase the longevity of pediatric heart transplants, improve the quality of life for children living with a new heart and eliminate pediatric heart diseases that may lead to a transplant.
SCIENTIFIC ADVISORY COMMITTEE
Janet N. Scheel, M.D.
Washington University, School of Medicine
Department of Pediatrics, Division of Cardiology
St. Louis, MO
To learn more, click here.
Kurt R. Schumacher, M.D.
Pediatric Cardiologist – C.S.
Mott Children’s Hospital Assistant
Professor of Pediatrics – University
of Michigan Ann Arbor, Michigan

To learn more, click here.

George T. Nicholson, M.D.

Pediatric Cardiologist-Monroe Carell Jr. Children’s Hospital,  Assistant Professor, Department of Pediatrics, Vanderbilt University School of Medicine

Cardiology St. Louis, MO

 
 
Dave Mathews, PhD
Emory University School
of Medicine MSTP,
Emory Transplant
Center, Immunology Research
Fellow Atlanta, GA.
Shriprasad Deshpande, M.D.

Children’s National Medical
Center Medical Director of
Pediatric Heart Transplantation
Assistant Professor of Pediatrics
– Emory University Atlanta, Georgia

Melissa Cousino Hood, PhD
Pediatric Heart Transplant
Psychologist, C.S. Mott Children’s
Hospital Assistant Professor of
Pediatrics, Division of Pediatric
Psychology University of Michigan
Transplant Center Ann Arbor, Michigan
To learn more, click here.
Michael Davis, PhD, FAHA
Director, Children’s Heart Research
and Outcomes Center (HeRO)
Assistant Professor of Biomedical
Engineering and Medicine, Emory
University Children’s Healthcare of
Atlanta Research Scholar Atlanta, GA
To learn more, click here.
 
Robert Boucek, M.D.

Board Scientific Liaison Research
Affiliate, Seattle Children’s Research
Institute Past Associations: Chief,
Division of Pediatric Cardiology,
Department of Pediatrics, University
of Washington School of Medicine,
Seattle WA Chief of Pediatric Cardiology,
University of South Florida/All Children’s
Hospital St. Petersburg, FL Medical
Director, Pediatric Cardiac Transplant
Program, Vanderbilt University,
Nashville, TN

 

Lori West, M.D.
Professor, Depts. of Pediatrics, Surgery, Medical Microbiology/ Immunology and Laboratory Medicine/Pathology
Canada Research Chair in Cardiac Transplantation
Director, Canadian Donation and Transplantation Research Program
Director, Alberta Transplant Institute
University of Alberta
Edmonton, Alberta
Canada
David Rosenthal, M.D.
Professor of Pediatrics, Stanford University School of Medicine
Medical Director, PACT Program at Stanford Children’s Health
Roma and Marvin Auerback Pediatric Cardiology Scholar
Richard Chinnock, M.D.
Professor & Chair of Pediatrics
Loma Linda University School of
Medicine Chief Medical Officer
Loma Linda University Children’s
Hospital Loma Linda, CA
Stephanie Nakano, M.D.
Assistant Professor, Pediatrics-Cardiology,
University of Colorado,
Denver Children’s Hospital Colorado
Alfred Asante-Korang, M.D.
Medical Director, Heart Transplant Program,
All Children’s Specialty Physicians,
Johns Hopkins All Children’s Hospital,
St. Petersburg, FL
Associate Professor of Pediatrics,
Division of Pediatric Cardiology,
Department of Pediatrics,
Johns Hopkins University School of Medicine
Juan C. Alejos, M.D.

Medical Director Pediatric Heart Transplant/Cardiomyopathy Program at UCLA Mattel Children’s Hospital
Director of the Pediatric Pulmonary Hypertension program
Clinical Professor at the David Geffen School of Medicine at UCLA in Pediatric Cardiology
Vice chair of JEDI for the Department of Pediatrics

Click here to learn more

Kevin P. Daly, M.D.
Medical Director – Heart Transplant Program Boston Children’s Hospital Assistant Professor of Pediatrics – Harvard Medical School
Maryanne Chrisant, M.D.
Director – Pediatric Cardiac Transplant, Heart Failure and Cardiomyopathy – The Heart Institute at Joe DiMaggio Children’s Hospital
Marc E. Richmond, M.D., M.S.

Director, Program for Pediatric Cardiomyopathy, Heart Failure and Transplantation

 

Associate Professor of Pediatrics at CUMC

 

Columbia University Vagelos College of Physicians and Surgeons | NewYork-Presbyterian Morgan Stanley Children’s Hospital

Click here to learn more 

David Scheinker, PhD
Founder and Director, SURF Stanford Medicine
Executive Director of Systems Design and Collaborative Research, Lucile Packard Children’s Hospital Stanford
Clinical Associate Professor, Pediatric Endocrinology, Stanford School of Medicine
Adjunct Professor, Management Science and Engineering, Stanford School of Engineering

OUR PARTNERS

We are so grateful to our many donors and community and corporate partners who are committed to improving the quality of life for transplant recipients. With their support, we are funding research aimed at building stronger hearts for longer lives. Please visit/learn about them, and consider supporting them as they’ve supported us and our mission!

AWARDS & ACHIEVEMENTS

FISCAL YEAR 2021 FILINGS & REPORTS

 

FY 2021 990 Filed

 

FY 2021 Audit Report

FISCAL YEAR 2020 FILINGS & REPORTS

 

FY 2020 990 Filed

 

FY 2020 Audit Report

FISCAL YEAR 2019 FILINGS & REPORTS

 

FY2019 Audit Report

 

FY 2019 990 Filed

 

FY 2019 Annual Report

FISCAL YEAR 2018 FILINGS & REPORTS

FY 2018 Annual Report

FY2018 Audit Report

FISCAL YEAR 2017 FILINGS & REPORTS:

FY2017 Audit Report

FY 2017 990 Filed

OFFICE ADDRESS

Enduring Hearts
11099 Houze Road, Suite 102
Roswell, GA 30076

TO REACH ADMINISTRATION OFFICE

Contact: Raeann Tighe

Email: rtighe@enduringhearts.org

FOR MORE INFORMATION OR QUESTIONS

Phone:
(240) EHEART-1

(240) 343-2781

 

Email:
info@enduringhearts.org

TO REACH OUR INTERIM CHIEF EXECUTIVE OFFICER

Contact: Joe Brownlee
jbrownlee@enduringhearts.org

Please fill out the form below to sign up!

Dr. Alejos received his medical degree from the University of Michigan in Ann Arbor
and completed an internship, residency, and fellowship at the UCLA Medical Center.
His areas of research interest include the use of pulmonary vasodilator therapies in
congenital heart disease especially those with single ventricle physiology. He is also
active in research involving the treatment of cardiomyopathy and outcomes research
pertaining to pediatric cardiac transplantation.

 

Dr. Alejos is also the president and founder of Hearts with Hope Foundation. Hearts with
Hope is nonprofit foundation founded in 2005 that sends medical teams to underserved
countries to provide medical and humanitarian support to children with congenital heart
disease. The medical teams train the country’s physicians on procedures and surgeries
that can vastly improve a child’s quality of life. All medical equipment and services are
provided at no cost to the child’s family.