Enduring Hearts Parent Advisory Network is Empowering Families
Being a parent of a child with significant medical needs is mentally, physically and financially challenging. Resources are stretched, families are stressed, and parents are often left searching for answers via the Internet or within chat groups on social media. Enduring Hearts understands the need for information and support. Several of our board members are also parents of a child who has received a heart transplant or have received one themselves.
The Enduring Hearts Parent Advisory Network was assembled to help families by empowering them with knowledge. As a member, you will receive not only important research updates but also provide valuable input to our organization about the needs of children and families.
As part of the Parent Network Advisory Group, you will receive:
Updates on pediatric heart transplant research
Updates on programs and supports to help families with ongoing costs
Links to trials
Exclusive surveys to provide guidance and input into medical research
Access to “Ask Dr. Boo,” our questions and answers forum with 40-year veteran Pediatric Cardiologist and Researcher